Showing posts with label Faith. Show all posts
Showing posts with label Faith. Show all posts

Monday, February 17, 2014

The Story of our Baby Girl

It's been awhile.
Over two Three months (I had to go back and change that because this post alone has taken me almost a month to finish).

But, lots has been going on.
Probably stuff that I should write about, but haven't had the energy to do so - napping has trumped blogging.

Let me fill you in...

On September 16th (yes, 5 months ago), three days before Jack's first birthday, we found out I was pregnant again.
It was quite the surprise.
My heart was racing with panic; Jason was weeping with joy.
Pretty much the same reactions as when we found out I was pregnant with Jack.
Except this time I kept thinking about how I was pregnant at this time a year ago.

But all you women who have ever been pregnant know that no matter how much shock or panic there is at first, the attachment to your baby comes just as instantly.  

After four weeks of waiting and not feeling super confident about the progression of the pregnancy (due to low progesterone levels and spotting), we had our first ultra sound and saw that little heart beating for the first time.
A little over a week later, I was back at the doctor's office, thinking I was going through a miscarriage because of extreme abdominal pain.
Turns out I was 'just' passing a kidney stone and our little baby was still growing and progressing.

We had our 12 week NT scan a few weeks later and shortly after that, a few days before Thanksgiving, we announced our excitement and thankfulness for the 'extra baking we were doing during the holiday season.'
Our 20-week ultra sound was scheduled for January 2nd. 
I barely slept the night before.
I was really nervous for it.
Much more so than with Jack.

We arrived at 6:45am for our appointment.
The tech took all the images she needed, but seemed pretty disengaged with us the whole time.
I finally relaxed when the doctor came in and immediately told us everything was looking wonderful.
She began to take a look around herself, and I noticed that she kept going back to the brain.
And she said a couple of times that there was definitely no cleft lip.
And back to the brain she would go. 
Then, she finally said it...
"There's a part of the brain that I should be seeing, but I'm not."

She continued to talk, telling us that nothing was confirmed because ultra sounds don't read the brain very well, but we would need to go get a second ultra sound and a fetal MRI at Stanford as a confirmation.

I couldn't muster up any words, so Jason asked all the questions.
The part she couldn't see was the corpus callosum, which connects the two hemispheres of the brain.
From what the doctor said, the effects could be very mild, but like a lot of things, there is a spectrum, and therefore a more severe side.

We had planned on doing a cake gender reveal with our families the following night, but I was not up for it.
Gender seemed so insignificant to me at this point, and I knew I was going to be emotional when we found out the sex.
I wanted Jason and I to find out just the two of us.
So that night, we sat on our couch and looked through the pictures they had put on a disc for us.
And then it came - the picture of 'nothing' with the words, 'I'm a girl.'
And then came the tears.
It was such a sweet moment.
I chose not to google, which is so unlike me. But, I know myself, and I knew I would diagnose our baby with the most severe case of this, so I stayed away from Dr. Google until we knew more.

Jason on the other hand wanted to know everything there was to know about people born without this part of the brain, so me not googling basically didn't help because Jason told me all the worst-case scenarios anyway.

We decided on her name the day after our 20-week u/s. Or as we say, she picked her own name. My sister looked up the meaning of one of the names we were leaning towards and this is what it meant: Symbol of Peace and Renowned Fighter. It was just too perfect, and so our baby girl had a name.

After a long two weeks of waiting, our appointment at Stanford finally came on January 15th. I was surprisingly calm thanks to the many people praying for us and our baby girl. Our prayers going into this appointment were that 1) they would see the corpus callosum; 2) if they did not see it, it would be a mild diagnosis; 3) God would give us peace and equip was for what our future held.

Our ultra-sound tech was great, and it was fun to see our baby girl again. She did a very thorough ultra-sound, examining all of the anatomy. I felt like I was really able to relax and just enjoy looking at our baby girl.

However, when the doctor came in with a cardiologist and two ultra-sound techs, my heart definitely started pounding. But, right away he said, "So, we aren't seeing any of the concerns that were on the first ultra-sound." He then went to show us the corpus callosum on her brain, and it was a clear as day!  Our referring doctor still wanted us to go through with the MRI for 100 percent certainty, so we did that and got the call later that afternoon confirming that we had a perfectly healthy baby girl. We are not shy to believe that this was God's little miracle for us.

It was quite the few weeks for us as we sat in uncertainty, but I know I am thankful for that time. God does amazing things in your heart as you face uncertainty and only have Him to lean on and trust. Regardless of any ultra sound and it's findings, our baby girl would have been loved just the same. We are thankful for His grace and love for us.

Sunday, February 17, 2013

Heavy Hearted, yet Hopeful

On September 21st, 2009, 6 year Daisy was diagnosed with a stage 3 Wilms tumor. Three and half years later, after 3 relapses, over 30 rounds of chemo, and 6 major surgeries, her little body couldn't fight any longer. Yesterday, on February 16th, Daisy went to be with Jesus.

I feel asleep last night in tears, grieving over a little girl and her family, who I've never even met, but whose story I've been following here.

On May 4th, 2011, 67 year-old Tim (Jason's mentor and the man who did our pre-marital counseling) was diagnosed with brain cancer. This was his second or third battle with some form of cancer in his adult life. After almost two years full of many surgeries and the spread of cancerous tumors to many parts of his body, the chemotherapy and treatments couldn't keep up with the cancer. Tim decided to stop treatments a week ago and said he was ready to 'go home.' Early this morning, at 12:03am, on February 17th, Tim went to be with Jesus.

Two different people, two different battles with cancer, two very different ages...but one Hope. The same Hope. The same ending. 

Eternal Life with Jesus.

What hope we have as believers...this life is not the end.

Jason and I have been heavy hearted as we grieve the loss of such an amazing godly man...probably one of the godliest men I have ever met. Throughout his whole battle with cancer the past two years, he has continued to proclaim the sovereignty of God and the joy of the Lord. He is finally experiencing true and complete joy right now as he sits in the presence of his Lord. This is what he has always wanted.
 With Tim and his wife Patti at our wedding...one month before his diagnosis

And Daisy...she and her family have the same hope...what joy and hope her father expressed here in a sermon he gave shortly before his young daughter's passing.

So while death is worthy of our grief, I am thankful to know a Savior who can give us such hope even when we are heavy hearted.

Thursday, February 14, 2013

Oh, How He Loves Us

I'm not a huge Valentine's Day person.
It's just never done it for me.
Not into the hype.
Single...dating...now married...
I could care less about it.
Jason isn't into it either.
We have NO plans for the night, and I'm quite fine with it.
We did cancel our college group, though, which means we get a free night in which we are usually busy.
That works for me. 

However, I wanted to share something that Jason and I have been talking about and dwelling on a lot since Jack was born.
And since it's about Love, I figured what better day to write about it than on a day that is all about love.

Two weeks ago in church, the worship band was playing the song 'Oh, How He Loves Us.'
Our pastor's wife was sitting in front of us holding Jack (she always takes him as soon as we walk into the service. I love that).
Jack was starring over her shoulders, looking at me and Jason.
As I listened to the song and looked at my son, I was overwhelmed with love.
Love for my son.
And love for my Savior.

It brought me back to the those first few days and weeks after Jack was born.
Becoming a parent has helped me grasp a little better the vast love God has for me.

Jason and I have had this conversation many times...
The moment Jack was born, there was an overwhelming love for him that is indescribable. (Yes, I loved him the moment I heard that first heartbeat...but there is nothing like the moment you first see and hold your child for the first time).
Instantly, I loved him.
In our adult lives, we're used to growing to love someone over time.
When I met Jason, it took me months to come to a place where I could say I loved him.
With my friendships, it takes time to foster such a relationship where there is a true love for that person.

But with Jack, there was nothing he needed to do to earn my love.
As a helpless baby, there was really nothing he could 'do' for me.
In fact, he was completely dependent upon me.
If anything, his need for me just grew my love for him, as I got to provide for his every need.
Just sitting with him and watching him was joy.

And, there was nothing he could do to make me love him less.

The sleepless nights, the puking, the crying...
None of it could take away my love for him.

If someone were to ask me if I would die for Jason, I'm pretty sure I would.
But, I am 100% certain that I would give my life for Jack. 
Without a doubt.

And this love I have for Jack, 
this overwhelming, passionate love,  
is just a taste of the love the Father has for me.
For us.

I get it a little more, now.

How he could love me so much, despite all my shortcomings and faults.
Despite all the times I have turned from him.
Despite my lack of love back.


I have done nothing to earn his love.

There is nothing more I can do to receive his love.
He loves me just as I am.
So much, that He would die for me...
even though I can give him nothing of value...
except relationship with Him.

Relationship with us is what He wants.

That's the desire of His heart.
That's what gives Him the most joy.

 And it makes a little more sense now.